California Parkinson's Disease Registry
California Health and Safety Code (HSC) 103870-103870.2 requires healthcare providers diagnosing or providing treatment to Parkinson's disease patients to report each case of Parkinson's disease to the California Department of Public Health beginning July 1, 2018. The Richard Paul Hemann California Parkinson's Disease Registry (CPDR) is a statewide population-based registry that will be used to measure the incidence and prevalence of Parkinson's disease.
Surprisingly, little is known about how Parkinson's disease is distributed among different population groups and whether the patterns of disease are changing over time. California's large and diverse population makes it ideal for providing important information about this disease. CPDR will expand our understanding of Parkinson's disease to ultimately improve the lives of those affected.
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PROGRAM UPDATE
(December 29): The
Data Disclosure Policies and Procedures from the California Parkinson’s Disease Registry are now available. The next deadline for data submission is
December 29, 2021, and will include all reportable patient encounters through September 30, 2021. Mandated reporting of Parkinson's disease cases will continue through 2022 in accordance with Assembly Bill No. 133. If you are a provider and have not yet submitted case information to the registry, it is not too late. CPDR will continue to accept case reports from previous reporting periods. The upcoming deadlines for 2022 are posted below.
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Data Submission Deadlines for 2022:
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July 1 - September 30, 2021
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December 29, 2021
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October 1 - December 31, 2021
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March 31, 2022
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January 1 - March 31, 2022
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June 29, 2022
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April 1 - June 30, 2022
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September 28, 2022
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July 1 - September 30, 2022
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December 29, 2022
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October 1 - December 31, 2022
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March 31, 2023
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*Note: CPDR will continue to accept case reports from previous reporting periods.
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