Resources for People with Post-COVID Conditions (Long COVID)

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The Center for Disease Control and Prevention's (CDC) COVID-19 resource site has a page with information on post-COVID conditions.
Talk to a medical provider if you think you may have a post-COVID condition.
If you or your medical provider are looking for an outpatient clinic specializing in post-COVID conditions, refer to this list of current post-COVID clinics.
Need help finding health care? Call your county Information line 2-1-1 or visit 211ca.org
Want to talk to a provider without leaving home? Ask your provider about telehealth. Learn more about how to use telehealth.

Make sure you have everything you need for your appointment by referring to the CDC Healthcare Appointment Checklist for Post-COVID Conditions

For some patients, at-home exercises can help with recovery and rehabilitation. See Bouncing Back From COVID-19: Your Guide to Restoring Movement from Johns Hopkins Medicine.
Some people with long COVID may suffer from Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and post-exertional malaise (PEM). Some of these symptoms can be treated or managed.

Support and patient advocacy groups for people with post-COVID conditions include: Body Politic, Survivor Corps, Long COVID Alliance, Long COVID Families, and Long COVID Kids.
See the CDC's webpage on Caring for People with Post-COVID Conditions for more resources, as well as CDC’s How Right Now support page.
Long COVID can be challenging for both people experiencing it and their loved ones and caregivers. Add mental health resources to your personal care toolbox.

Read the US Health and Human Services (HHS) guide to long COVID as a disability. Additionally, the US Department of Labor has long COVID resources. Individuals can apply online for disability benefits.
Parents and educators concerned about children or students with long COVID should refer to resources from the US Department of Education.

Parents can get help at Parent Training and Information Centers (PTI) from the Center for Parent Information and Resources (CPIR) funded by the Office of Special Education Programs at the U.S Department of Education. Find contact information and locations of centers.

Originally published on August 25, 2022