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US ZIKA PREGNANCY AND INFANT REGISTRY

The U.S. Centers for Disease Control and Prevention (CDC) has established a national U.S. Zika Pregnancy and Infant Registry to address questions about Zika-associated birth defects and other pregnancy outcomes. All data reported to the U.S. Zika Pregnancy and Infant Registry will be de-identified and healthcare provider participation is voluntary. The California Department of Public Health (CDPH) is participating in the U.S. Zika Pregnancy and Infant Registry and is the point of contact for California data submission to CDC. CDPH is working with local health departments and healthcare providers to complete the U.S. Zika Pregnancy and Infant Registry data collection forms for submission to CDC.

U.S. Zika Pregnancy and Infant Registry: How to Participateā€‹

 Registry Formsā€‹
 Fact Sheets
The U.S. Zika Pregnancy and Infant Registry potential data collection points include the time of maternal diagnosis, second trimester, third trimester, delivery, and infant follow-up at 2, 6, 12, 18 and 24 months.

Eligibility for Inclusion in the Registry

  • Pregnant women in the United States with laboratory evidence of Zika virus infection (positive or equivocal test results, regardless of whether they have symptoms) and periconceptionally, prenatally or perinatally exposed infants born to these women.
  • Infants with laboratory evidence of congenital Zika virus infection (positive or equivocal test results, regardless of whether they have symptoms) and their mothers. ā€‹ā€‹ā€‹
Resources

Local Health Department Reporting of Zika in Pregnancy to the US Registry (PDF)

Zika Virus and Birth Defectsā€”Reviewing Evidence for Causality

Evaluation and Follow-Up Procedures for suspected Congenital Zika Virus Infectionā€”Fetus, Newborn and Infant (PDF)

Interim Guidance for the Evaluation and Management of Infants with Possible Congenital Zika Virus Infectionā€”October 2017

Contact

For more information on the US Zika Pregnancy Registry and how to report outcomes:
Email: ZikaOutcomes@cdph.ca.gov
Phone: (510) 620-3151
Fax: (510) 620-3152
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